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<p><strong><span style="font-family: Arial">Muscular Dystrophy and Nutrition
Therapy</span></strong></p></td></tr></tbody></table>
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<p><span style="color: red">Muscular Dystrophy</span> <br />
<a href="index.html">Home</a></p></td>
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<p><span style="font-size: 11pt; font-family: Arial"><em>“At our
son’s last visit to the pediatrician, the doctor was completely amazed at how
well he is doing. He shows no signs of typical MD that she was expecting
based on her experience with conventional medicine.” </em></span><strong><span style="font-size: 11pt; font-family: Arial"></span></strong></p>
<i>"I was diagnosed with the FSHD form of muscular dystrophy some years ago and given the typical 'there is no known cure' comment from the muscle specialist, neurosurgeon and my family doctor. I accepted the situation, but continued to hope for some development in the disease. I came across your web site, and read the article on M.D. For the first time in years I felt encouraged and began to try a combination of the items listed in the article. I noticed an immediate increase in my energy level, which felt good in itself, but the "amazing" happened just recently when both my wife and I noticed a increase in the size of my left leg's calf muscle (this is without exercising). It was very obvious. I am continuing with the vitamins and supplements with an eager, though cautious 'one day at a time,' expectation of further results."</i>
<p>
<p><strong><span style="font-size: 11pt; font-family: Arial">MUSCULAR DYSTROPHY
<o:p></o:p></span></strong></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Everybody knows what
muscles are, and when they don’t work, the weakness, frailty and incapacity
of a little child with muscular dystrophy makes for many a poignant poster
and tearful telethon. "There is no treatment… there is no specific
therapy," says the <em>Merck Manual</em>. The National Institutes of Heath
says the same thing: "There is no specific treatment for any of the
forms of MD." </span><span style="font-size: 10.0pt"><a href="http://www.ninds.nih.gov/health_and_medical/disorders/md.htm"><span style="font-family: Arial">http://www.ninds.nih.gov/health_and_medical/disorders/md.htm</span></a></span><span style="font-size: 11.0pt; font-family: Arial"> , accessed April 2004)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Such despairing,
autocratic but research-friendly pronouncements must not be seen as the last
word until we adequately weigh in maternal and fetal malnutrition as a
fundamental cause of muscular dystrophy. The good news (to be considered
further below) is that if nutrient deficiency can cause an illness, nutrient
therapy may ameliorate, or even cure, that illness.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Malnutrition causes
muscular dystrophy? The short answer is, Yes. "Dystrophy: 1. Defective
nutrition. 2. Any disorder caused by defective nutrition." (<em>American Heritage Dictionary of the
English Language</em>, p 407.) When we consider all this means, we are poised
to head down a steep slope. Nothing gets you into the emotional soup faster
than being perceived as blaming a baby’s birth defect on the mother’s diet.
Truly, it is very difficult to know for sure if a birth defect is the result
of genetics or environmental factors. The mother represents half of a
developing baby’s heredity, but almost all of the developing baby’s
environment. Every single cell in a baby is the product of inherited DNA
instruction. But every single cell in a baby is also the product of the
mother's diet.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">"Dinner Table
Heredity"
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Ova (human eggs) are
formed during the fetal stage of a female’s life. In other words, all of a
woman’s own eggs are actually formed while she was developing inside her
mother, before she herself was born. Wow. This means that what your
grandmother ate significantly contributed to your anatomy. Think that one
over: What looks to be purely a genetic problem may in fact be a largely a
nutritional one. I call this "Dinner Table Heredity." Just because
a problem comes out of the womb does not mean that that problem is genetic
and only genetic. Science has known for decades that many a specific birth
defect is a direct result of a specific vitamin deficiency. (1-3)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Spina bifida, now
well-known to be caused by a lack of folic acid (folate), is an example. I
personally was born with a slight degree of spina bifida. I do not blame my
mother; I might blame those who wrongly advised her about her pregnancy diet.
I most certainly blame the food processing industry for systematically milling
away the B-complex vitamins from her daily bread, and I blame the government
for letting them get away with it.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Unlike spina bifida,
muscular dystrophy may be reversible. However, MD is almost certainly not a matter of
simple malnutrition, for it often does not respond to low-dose nutrient
therapy. But it may sometimes respond to high-dose nutrient therapy, and may therefore
be what orthomolecular physicians call a "genetotrophic" disease.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">GENETOTROPHICS
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">The important
interrelationship between food and the genes was first called the
"genetotrophic concept" by Roger J. Williams, PhD. Dr. Williams,
the discoverer of the B-vitamin pantothenic acid, has explained in his books
and scientific papers how existing biochemical birth defects may be
effectively overcome with optimum nutrition.<span> </span>(</span><span style="font-size: 11.0pt"><a href="../../biblio_williams.html"><span style="font-family: Arial">http://www.doctoryourself.com/biblio_williams.html</span></a></span><span style="font-size: 11.0pt; font-family: Arial">). Please consider (and note the
publication date):
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Williams RJ. (1953).
Muscular dystrophy and individual metabolic patterns: The possibilities of a
nutritional therapeutic approach. Proc. of the First and Second Medical
Conferences [1951-1952] of the Muscular Dystrophy Assoc. of America, 118-22
(Additional references below, 4-7.)
<o:p></o:p></span></p>
<p><strong><span style="font-size: 11.0pt; font-family: Arial">In genetotrophic diseases, genetic abnormality leads to
nutritional disability.</span></strong><span style="font-size: 11.0pt; font-family:
Arial"> To compensate, the body requires the availability of larger than
normal quantities of one or more nutrients for the affected gene to
successfully express itself. For that particular person, normal dietary
vitamin intakes are quite inadequate for normal function. It is a bit like
trying to take a hot bath with the drain open: it can be done, but you are
going to need a lot more hot water.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">I think muscular
dystrophy may constitute a good example of a genetotrophic disease. This also
goes a long way to answering the perennial parents' question as to how one
child can be healthy while the sibling is afflicted with MD. . . when Mom ate
pretty much the same diet during both pregnancies. There may be both a
genetic component and a nutritional component. Rather than a nutrient
deficiency, <strong>MD may more exactly be
considered to be a genetically-influenced nutrient dependency.
<o:p></o:p></strong></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">IS
<st1:street w:st="on">
<st1:address w:st="on">THERE A WAY</st1:address></st1:street> OUT?
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">To a family with a child
with muscular dystrophy, it must seem like the worst form of Monday Morning
Quarterbacking to say what might have caused the disease their child already
has. Coulda, shoulda, woulda is poor compensation for the parents of a
disabled child, and to discuss it is to invite after-the-fact feelings of
guilt and helplessness. So the real question is, To what extent might
individual nutrients enable the sufferer to overcome the existing condition?
There is considerable good news, and all of it is nutritional.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">COENZYME Q10
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">By now, CoQ10
(umbiquinone) should probably be accepted as a vitamin. Many other vitamins
are coenzymes. CoQ10 is found in very tiny quantities in foods. Most young
people make CoQ10 in their bodies, but a youngster with muscular dystrophy
may either make too little or have a bigger requirement because of the illness.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">It has been established
that heart muscle greatly benefits from CoQ10 supplementation, resulting in
improvement in cases of congestive heart failure and even cardiomyopathy.
Striated cardiac muscle and striated voluntary (skeletal) muscle are not that
dissimilar. Furthermore, Folkers et all write that:
<o:p></o:p></span></p>
<p><em><span style="font-size: 11.0pt; font-family: Arial">"Cardiac disease is commonly associated with
virtually every form of muscular dystrophy and myopathy. . . The rationale of
this trial was based on known mitochondrial myopathies, which involve
respiratory enzymes, the known presence of CoQ10 in respiration, and prior
clinical data on CoQ10 and dystrophy. These results indicate that the
impaired myocardial function of such patients with muscular disease may have
some association with impaired function of skeletal muscle, both of which may
be improved by CoQ10 therapy. . . CoQ10 is the only known substance that
offers a safe and improved quality of life for such patients having muscle
disease." </span></em><span style="font-size: 11.0pt; font-family: Arial">(8)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Because CoQ10 is so
absolutely vital to muscle cells, involved with growth control, cellular
energy production, and other essential life functions, it warrants special
consideration for persons with muscular dystrophy.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">In two
placebo-controlled, double-blind trials, 100 mg CoQ10 daily resulted in
"definitely improved physical performance" in patients with
muscular dystrophies and atrophies. "In retrospect," the authors
wrote, "a dosage of 100 mg was too low although effective and
safe." But even at this low dose, their conclusion was emphatic:
"Patients suffering from these muscle dystrophies and the like should be
treated with vitamin Q10 indefinitely." (9)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">I submit that 300-600
mg/day would be a more effective dose, especially for an older MD child. For most
families, the limiting factors will be cost or medical disapproval. Even
pricey supplements are cheaper than most drugs. And as there are no harmful
side effects with CoQ10, it is inexcusable to NOT give it a serious
therapeutic trial.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Let's be fair: If CoQ10
is important to rabbits, might it also be important to children? (Boler JB,
Farley TM, Scholler J, Folkers K. Deficiency of coenzyme Q10 in the rabbit.
Int Z Vitaminforsch. 1969;39(3):281-8.)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">VITAMIN E
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Like CoQ10, vitamin E is
an antioxidant. There is a long history of scientific suspicion, to this day
largely untested, that antioxidants are of unusual benefit to individuals
with muscular dystrophy. Linus Pauling wrote about muscular dystrophy, both
experimental and hereditary, in <em>How to Live
Longer and Feel Better</em>. Dr. Pauling’s comments are here reprinted with
permission of the Linus Pauling Institute,
<st1:place w:st="on">
<st1:placename w:st="on">Oregon</st1:placename>
<st1:placetype w:st="on">State</st1:placetype>
<st1:placetype w:st="on">University</st1:placetype></st1:place>:
<o:p></o:p></span></p>
<p><em><span style="font-size: 11.0pt; font-family: Arial">"It was
recognized more than fifty years ago that a low intake of E leads to muscular
dystrophy, a disorder of the skeletal muscles characterized by weakness
similar to that caused by a deficiency of vitamin C (the studies of vitamin E
and muscular dystrophy have been discussed by Pappenheimer; 1948). . .
Several kinds of hereditary muscular dystrophies are known. For the most part
their nature is not thoroughly understood, and there is no specific therapy
recommended for them. Myasthenia gravis is treated by inhibitors of
cholinesterase, corticosteroids, and surgical removal of the thymus gland.
The medical authorities do not mention the possible value of vitamins in
controlling muscular dystrophies. The evidence about the involvement of
vitamin E and vitamin C as well as B6 and other vitamins in the functioning
of muscles suggests that the optimum intakes of these nutrients should be of
value to the patients. So far as I know, no careful study of an increased
vitamin intake for patients with hereditary muscular dystrophy has been
reported." </span></em><span style="font-size: 11.0pt; font-family: Arial">(p
160)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">With the exception of the
CoQ10 studies referenced above, Dr. Pauling's statement of 20 years ago,
unfortunately, still pretty much stands. I found a couple of studies, one
with 15 patients using vitamin E and selenium reporting "minimal"
benefits (10) and another with 16 patients, showing "slight" benefit
(11). I think they would have obtained far better results if they had used
larger doses of selenium, much larger doses of vitamin E, and only the
natural form of vitamin E.
<o:p></o:p></span></p>
<p><strong><span style="font-size: 11.0pt; font-family: Arial">Then there was <em>this</em>
study, using 600 mg of vitamin E and a high amount of selenium (4,000 mcg
Na2SeO3), which got very good results in all five patients studied. </span></strong><em><span style="font-size: 11.0pt; font-family:
Arial">"All improved their grip strength. . ., two normalized their
gait, another two can now sit down on their heels and stand up, one patient
can now walk on his toes, one can now get up from lying on the floor without
using a chair and two patients have improved their physical capacity. . . No
side-effects were observed."</span></em><span style="font-size: 11.0pt; font-family: Arial"> (12)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">This is, at the very
least, genuinely encouraging.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Why no new, large-scale
studies of high dose selenium-vitamin E therapy? Because drugless therapy is
ignored by drug companies, and consequently remains unpromoted and unknown to
physicians. There is no money in products that cannot be patented. Children
learn at an early age that mud pies don't sell. No investment is made, no
research is done where there is no money is to be recovered. Drug companies
do not expect to find, nor do they want to find, a cure that does not involve
a drug. A tragic example is modern medicine's approach to muscular dystrophy.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">No doubt Jerry Lewis is a
great guy and his heart is in the right place. But he may have unwittingly
set the cause of health science back a generation. Telethons to raise cash
for drug research for muscular dystrophy are expensive anachronisms. They are
just re-inventing the wheel, and they're building it wrong to boot. Remember:
"Dystrophy" means "malnutrition." There is no drug that
corrects malnutrition, and never will be.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Agricultural scientists
know this. <strong>You will have little
trouble finding research studies on the role of selenium or vitamin E in
preventing muscular dystrophies in chickens, cattle or calves, sheep or
lambs. </strong>What works with calves should, in my opinion, be reasonably
applied to people. (13,14)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Yet in spite of the long
and expensive history of research on human muscular dystrophy, only a very
small portion has involved vitamins, and was done quite some time<strong> </strong>ago.<strong> </strong>In the third edition of <em>The Vitamins in Medicine</em>,
Bicknell and Prescott provide a thorough review of the literature on pages
612-619 and 635-641. There is considerable evidence that the disease is an
inability of muscle tissue to efficiently utilize vitamin E. I give you the
following quote: <br />
<br /><em>"The peculiar muscular degeneration of muscular dystrophy may be
produced in animals is caused and is only caused by lack of vitamin E. Human
muscular dystrophy shows identically the same peculiar degeneration. The key
to the cure of muscular dystrophy is vitamin E."</em> (See: Rabinovitch R
et al (1951) Neuromuscular disorders amenable to wheat germ oil therapy. <em>J.
Neurol. Neurosurg. Psychiat. </em>14:95-100.)
<o:p></o:p></span></p>
<p><strong><span style="font-size: 11.0pt; font-family: Arial">Synthetic vitamin E will not work.</span></strong><span style="font-size: 11.0pt; font-family: Arial"> On pages 643-644 of The Vitamins
in Medicine, DL alpha tocopherol (synthetic "vitamin E") is
described as "valueless." It has to be the natural
"D-alpha" form, specifically including the complete mix of natural
tocopherols and tocotrienols, preferably from or with fresh stone ground
whole wheat bread, wheat germ, or wheat germ oil. (p 645).
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Muscular dystrophy is
described as easier to cure in children, and easier still with added B vitamins
and vitamin C (p 644).
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Perhaps the most
remarkable revelation of all is that this medical textbook was written in <strong>1953</strong>. Has the human body changed in
55 years? Has muscular dystrophy changed in 55 years? No. Only our <em>understanding </em>of a disease can be said
to have changed, and in this case, has changed for the worse. We have ignored
the evidence, and doctors still tell patients that MD is incurable. If that
angers you, read on.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">SELENIUM <br />
The essential trace mineral selenium works closely with vitamin E and helps
the body to get more out of less of the vitamin. This important biochemical
partnership, or synergy, only works if both nutrients are present. It takes
very little selenium, probably about 100 to 300 micrograms (mcg) a day to
protect your cells and membranes from harmful oxidation via the protective
selenium-containing enzyme, glutathione peroxidase, found in all body cells.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Blood levels of selenium
are reduced in muscular dystrophy. "Myotonic dystrophy and all its major
symptoms (including muscle dystrophy) can be cured or prevented in animals by
selenium supplementation." (Werbach M. (1988) <em>Nutritional Influences
on Illness</em>,
<st1:place w:st="on">
<st1:city w:st="on">New Canaan</st1:city>,
<st1:state w:st="on">CT</st1:state></st1:place>: Keats, p 310-311. A more
recent version of this excellent book is reviewed at </span><span style="font-size: 11.0pt"><a href="../../werbach.html"><span style="font-family: Arial">http://www.doctoryourself.com/werbach.html</span></a></span><span style="font-size: 11.0pt; font-family: Arial"> .)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">The vitamin-E-friendly
mineral selenium is found in nutritional (or brewer’s) yeast, seafood,
legumes, whole grains, animal products, and vegetables. However, food can be
an unreliable source of selenium, as selenium content of soils varies around
the nation.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">For normally healthy
individuals, overdose of selenium is possible with chronic excessive dietary
intake. But we need to bear in mind that in the Orndahl study cited above,
muscular dystrophy patients showed improvement with a daily dose of up to
1,400 mcg elemental selenium over period of nearly two years. Toxicity is
clearly not a major issue.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">LECITHIN
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Lecithin has been shown
to improve therapeutic response when included along with vitamin E
supplementation. This is probably due to the fact that lecithin contains a
great deal of both inositol and phosphatidvl choline, which appear to reduce
creatinuria in those with muscular dystrophy. Daily dosage used is about 20
g, which is about <strong>three tablespoons</strong>
per day (15-17).
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">CONCLUSION<br />
A Medline search at the National Library of Medicine in
<st1:place w:st="on">
<st1:city w:st="on">Washington</st1:city>,
<st1:state w:st="on">D.C.</st1:state></st1:place>,
will yield over 18,300 studies that in some way relate to muscular dystrophy.
Yet I have seen no evidence whatsoever that current muscular dystrophy
research includes megavitamin and mineral therapy. Every time I see
"Jerry's kids" on a poster or on TV, it gets me right here. And
every time I'm solicited for a donation to a medical charity, I tell the
canvasser that I'll gladly contribute the moment their organization begins to
sponsor clinical trials with lecithin, selenium, and vitamin E. It has
already been shown that selenium, vitamin E and CoQ10 levels are decreased in
people with muscular dystrophy. (Ihara Y, Mori A, Hayabara T, Namba R,
Nobukuni K, Sato K, Miyata S, Edamatsu R, Liu J, Kawai M. Free radicals,
lipid peroxides and antioxidants in blood of patients with myotonic
dystrophy. J Neurol. 1995 Feb;242(3):119-22.) <em>The Vitamins in Medicine</em> was published over half a century ago.
So was Dr. Williams' paper on treating MD with nutrition. What is taking so
long to apply that knowledge to those suffering today?
<o:p></o:p></span></p>
<p><strong><span style="font-size: 11.0pt; font-family: Arial">MUSCULAR DYSTROPHY IN A TWO YEAR OLD
<o:p></o:p></span></strong></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">A
mother writes (January 14, 2008):
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial"><span> </span>
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">“My child
will be two later this month. He was labeled with muscular dystrophy (MD)
last year, quite by accident. He had an issue with breath holding: he held
his breath at daycare too long, passed out, and they called an ambulance. He
ended up in the hospital for seven days of testing, and at the end of those
tests is when they tested for MD.
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">
<o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">“I was
told by the muscular dystrophy doctor that his life expectancy will be a
wheelchair by 10 years old, and death by 20 years old. As you can
understand, it was quite a shock to our family. The following weeks
later, when the DNA tests came back as positive for either Duchanes or
Becker’s MD, I was totally confused. Our pediatrician told us that the
medical world doesn’t really know with the DNA testing what type… that will
be determined as he develops, but since he had been diagnosed so early,
it was most likely Duchanes, and she was very sorry that there was nothing
that could be done.
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">
<o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">“The one
thing that we did take away from the hospital experience as well as then the
initial discussions with our pediatrician, was that once he had been given
the MD label, people started treating him as a label, and not as a
person. This experience has prompted us to not tell many people (unless
it’s needed) of the label he has been given, as we want people to see the lad
first as the person he is.
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">
<o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">“My
husband and I (with extended family support) decided this was not enough. We
were not willing to accept that there is simply nothing we could do. Fortunately
for us we found the DoctorYourself website by searching MD and nutrition on
the internet.
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">
<o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">“The
following are the supplements that our child, age two, currently takes, and
has been for the past year. He is now 33 inches tall and weighs 25 lbs.
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">
<o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">“Daily:
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">Liquid
children’s multivitamin (daily serving)
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">Liquid
Calcium (600 mg)
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">Liquid
Vitamin E (150 i.u.)
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">Cod Liver
Oil (daily serving)
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">Soy Lecithin
(1-2 tsp)
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">Flax
seeds & wheat germ oil – when can get into foods, banana bread, yogurt,
etc.
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">
<o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">“In
addition, over a two day span, in a powdered form mixed together and put into
milk (I try to do it in equal amounts over each day)
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">
<o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">1,000 mg
Taurine
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">400 mcg
folic acid
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">60 mg CoQ10
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">50 mcg
selenium
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">1,000 mcg
Vitamin B12
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">1,000 mg
Vitamin C
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">120 mg
Gingko
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">4,000 mg
MSM
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">20 g whey
protein
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">8000 mg
L-Glutamine
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">1,500 mg
L-Arginine
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">800 mg
Creatine
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">
<o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">“Additionally,
we try to ensure a healthy diet, including organic milk products, fruit and
vegetables, and limit refined sugar in his diet (but certainly do no limit it
completely – just try to use info from Dr. Saul’s website on healthy eating
for children). We do other non-nutritional things too, including seeing
a physical therapist twice a month.
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11.0pt; font-family: Arial">
<o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size: 11pt; font-family: Arial">“At our
son’s last visit to the pediatrician in early December, 2007, <strong>the doctor was completely amazed at how
well he is doing. He shows no signs of typical MD </strong>that she was expecting
based on her experience with conventional medicine.” </span></p>
<p class="MsoNormal"><span style="font-size: 11pt; font-family: Arial"> </span></p>
<p class="MsoNormal"><span style="font-size: 11pt; font-family: Arial"> </span></p>
<p class="MsoNormal"><span style="font-size: 11pt; font-family: Arial">While this is admittedly a long way from cure, I think it is very encouraging. There is little if any downside to trying nutritional therapy. Bad nutrition has never improved anything, and good nutrition frequently has.
<o:p></o:p></span></p>
<p><em><span style="font-size: 11pt; font-family: Arial"></span></em><em><span style="font-size: 11.0pt; font-family: Arial">
<o:p></o:p></span></em></p>
<p><em> </em></p>
<p><span style="font-size: 11.0pt; font-family: Arial">REFERENCES:
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">1. Hillemann HH. (1956)
"Maternal Malnutrition and Fetal Prenatal Development Malformation"
(Address at
<st1:place w:st="on">
<st1:placename w:st="on">Oregon</st1:placename>
<st1:placetype w:st="on">State</st1:placetype></st1:place> College, November
9)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">2. Hillemann HH. (1958)
"Maternal Malnutrition and Congenital Deformity" (
<st1:place w:st="on">
<st1:city w:st="on">Grants Pass</st1:city>
<st1:state w:st="on">Oregon</st1:state></st1:place>
Address, March 17)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">3. Hillemann HH. (1961)
"The Spectrum of Congenital Defect, Experimental and Clinical" <em>Journal of Applied Nutrition</em> 14:1,2.)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">4. Williams RJ.
Beerstecher E, Jr, and
<st1:state w:st="on">
<st1:place w:st="on">Berry</st1:place></st1:state>,
LJ. "The Concept of Genetotrophic Disease," <em>Lancet,</em> February 18, 1950, 287-90.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">5. Williams RJ.
"Concept of Genetotrophic Disease," <em>Nut. Rev, </em>8, 257-60 (1950).
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">6. Williams RJ. "The
Unexplored Field of Genetotrophic Disease," <em>MD,</em> 6, 123-4, 136 (1951).
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">7. Williams RJ. and
Rogers, LL. "The Formulation of a Genetotrophic Supplement for the
Experimental Treatment of Diseases of Obscure Etiology,"
<st1:place w:st="on">
<st1:state w:st="on"><em>Texas</em></st1:state></st1:place><em> Reports Biol. Med</em>., 11, 573-81
(1953).
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">8. Folkers K, Wolaniuk J,
Simonsen R, Morishita M, Vadhanavikit S. Biochemical rationale and the
cardiac response of patients with muscle disease to therapy with coenzyme
Q10. <em>Proc Natl Acad Sci U S A</em>. 1985
Jul;82(13):4513-6.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">9. Folkers K, Simonsen R
(1995) Two successful double-blind trials with coenzyme Q10 (vitamin Q10) on
muscular dystrophies and neurogenic atrophies. <em>Biochim Biophys Acta</em> 1271(1):281-6. May 24.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">10. Backman E, Henriksson
KG. Effect of sodium selenite and vitamin E treatment in myotonic dystrophy. <em>J Intern Med.</em> 1990 Dec;228(6):577-81.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">11. Gamstorp I, Gustavson
KH, Hellstrom O, Nordgren B. <em>J Child
Neurol</em>. 1986 Jul;1(3):211-4. A trial of selenium and vitamin E in boys
with muscular dystrophy.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">12. Orndahl G, Sellden U,
Hallin S, Wetterqvist H, Rindby A, Selin E. Myotonic dystrophy treated with
selenium and vitamin E. <em>Acta Med Scand</em>.
1986;219(4):407-14.)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">13. Orndahl G et al.
(1983) Selenium therapy of myotonic dystrophy. <em>Acta. Med. Scand. </em>213:237.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">14. Hidiroglou M, Jenkins
K, Carson RB, Brossard GA. Selenium and coenzyme Q10 levels in the tissues of
dystrophic and healthy calves. <em>Can J
Physiol Pharmacol.</em> 1967 May;45(3):568-9.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">15. Jackson MJ, Jones DA,
Edwards RH. Vitamin E and muscle diseases. J Inherit Metab Dis. 1985;8 Suppl
1:84-7. (This review explains how vitamin E, and the phospholipids in
lecithin, benefit the muscles.)
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">16. Milhorat AT and
Bartels WE. (1945) The defect in utilization of tocopherol in progressive
muscular dystrophy. <em>Science </em>101:93-4.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">17. Milhorat AT et al.
(1945). Effect of wheat germ on creatinuria in dermatomyositis and
progressive muscular dystrophy. <em>Proc. Soc. Exp. Biol. Med</em>. 58:40-1.
<o:p></o:p></span></p>
<p><span style="font-size: 11.0pt; font-family: Arial">Copyright 2008, 2007 and
prior years by Andrew W. Saul,
<o:p></o:p></span></p>
<p><strong><span style="font-size: 11.0pt; font-family: Arial">Andrew Saul is the <span class="grame">author of the books <em>FIRE</em></span><em>
YOUR DOCTOR!</em> How <em>to be Independently Healthy </em>(reader reviews at<em></em><a href="../../review.html">http://www.doctoryourself.com/review.html</a>
) and <em>DOCTOR YOURSELF: Natural Healing that Works.</em> (reviewed at <a href="../../saulbooks.html">http://www.doctoryourself.com/saulbooks.html</a>
) </span></strong><strong><span style="font-size:
11.0pt">
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<p><strong><span style="font-size: 11.0pt; font-family: Arial">For ordering information, <a href="../../order.html">Click Here</a></span></strong><strong><span style="font-size: 11.0pt"> .
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